About this survey  

In this survey, we are interested in hearing about the assumptions people make about your MS and the harm they can cause. We will use the results of this survey to inform the MS Awareness Week campaign, which runs from 20 - 26 April.  

This campaign will be run as a collaboration between the MS Society, MS Trust, Overcoming MS, MS-UK, Shift.MS, Neuro Therapy Network, MS Together, and Talks with MS.  

Should I complete this survey?   

It is completely up to you whether you would like to complete the survey. If you do wish to complete it, you must be over 18 years old, live in the UK, and have MS. We also welcome friends, family, and carers to complete on behalf of someone with MS. The survey should take around 10 minutes to complete. The closing date is 27th February 2026.    

How will my information be used?  

We won’t report our findings in a way that would allow you to be identified, and responses will be anonymised before reporting and publishing. 

We are using the platform (Alchemer (EU)) to gather this information; find out how they manage your data by reading their Privacy Policy https://www.alchemer.com/privacy. 

Identifiable responses will be stored securely for a maximum of 2 years. Only the MS Society will access this data. If you choose to share your contact details at the bottom of this survey, one of the eight charities named above, including the MS Society, may contact you; information shared at this point will be managed under their respective policies.  

You are free to withdraw from this survey, even if you’ve submitted responses, until the survey closes. If you wish to withdraw, please email evidence@mssociety.org.uk. 

If you wish to complete the survey over the phone or for any other queries, please contact Pressoffice@mssociety.org.uk  

Os byddai’n well gennych gwblhau’r arolwg hwn yn y Gymraeg, e-bostiwch Pressoffice@mssociety.org.uk gyda’ch cais a’ch rhif cyswllt a byddwn mewn cysylltiad.

If completing this survey raises any concerns or difficulties about your personal circumstances, and you would like to talk to someone, please reach out to the free MS Society helpline on 0808 800 8000 or helpline@mssociety.org.uk.